This is a joint blog by myself (Melissa), and my husband (Steve). I was recently diagnosed with EDS (Ehlers-Danlos Syndrome). EDS is a painful genetic disorder with no cure and no treatment. EDS symptoms are treated, but not the underlying cause. If you want details about EDS, go to the EDS wikipedia page (surprisingly great resource), there's no reason for us to regurgitate those easily available facts.
My husband has his own blog, IP kills, that he started in early September 2013. His blog focuses on intractable pain and the negative effects on your social life, emotional wellbeing, and family. He suffers from intractable pain due to an inoperable brainstem tumor. He also suffers from several other conditions, but this blog isn't about him, or at least not his health, so I'll leave it at that for now.
We both recommend that anyone dealing with a painful condition read Dr. Forest Tennant's Intractable Pain Patients' Handbook for Survival.
bit.ly/PainGuidePDF
We haven't setup an email address for this blog get, so (for now) any feedback can be sent to:
IntractablePainKills@gmail.com
Mel (& Steve)
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